cystinosisrn

AVROBIO Cystinosis Focus Group

AVROBIO is looking for perspectives from the cystinosis community. They will be conducting a small focus group to help...

The Dicks Family sat down for a candid conversation with Daniel Levine from Global Genes. During the latest podcast,...

This summer we reached a milestone – over $40,000 in scholarships awarded since our program’s inception. Congratulations to the...

Members of the CRN’s Scientific Review Board have compiled articles for those interested in learning more about an additional...

In a quarterly update, AVROBIO announced: “Data from the patients dosed to date across three indications continue to...

The Cystinosis Research Network has announced new board member updates. At the last Board Meeting, the nominating committee proposed...

Today (July 16) the first-ever, 100% online CRN Family Conference begins. Registration is still open so we invite you...

Please click here for the latest updates from Leadiant on the Cystadrops shortage. If you have further questions, please...

Interim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.

The CRN 2021 Family Conference is July 16 – July 18. In response to the COVID-19 pandemic, we’ve decided...