Author: cystinosisrn

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Going Virtual: CRN Family Conference Kickoff

Today (July 16) the first-ever, 100% online CRN Family Conference begins. Registration is still open so we invite you...

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May 2021 Cystaran Update

Please click here for the latest updates from Leadiant on the Cystadrops shortage. If you have further questions, please...

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An Open Letter to the Cystinosis Community

Interim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.

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2021 Summer Conference Announcement

The CRN 2021 Family Conference is July 16 – July 18. In response to the COVID-19 pandemic, we’ve decided...

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Cystinosis Awareness Day – Discovering a New Type of the Disease

In the late 1970’s, a hospitalization led to a cystinosis diagnosis which was uncommon at the time. Karen, and...

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Cystinosis Awareness Day – A Message from Leadiant Biosciences

In honor of Cystinosis Awareness Day – May 7 – Leadiant Biosciences is commemorating this event with a letter...

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For Cystinosis Families: Free Needle Poke Wellness Kits

Angel Aid is currently providing free trauma-less needle poke wellness kits for the cystinosis community. Their “Buzzy” kits were...

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The CRN Welcomes Tim Wyman

On March 8, 2021, the Cystinosis Research Network announced Tim Wyman as the new interim President. The position was...

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Joint Research Funding into the Molecular Causes of Infertility in Male Cystinosis Patients

Cystinosis Ireland and the CRN are delighted to announce  they will jointly fund research project entitled “Perturbations in the...

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New CYSTARAN® Eye Drop Manufacturer Secured

February 12, 2021Dear Cystinosis Community:  We wanted to share an update from Leadiant Biosciences regarding the CYSTARAN® (cysteamine ophthalmic...

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