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Shortage Impacting WBC Testing Kits

An announcement from Horizon Therapeutics: With the growing dry ice shortage there has been an increased demand for NanoCool...

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Mental Health Survey from Children’s Friend Inc.

Children’s Friend Inc. is studying the experiences in and barriers to accessing mental health services for families. For the...

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COVID-19 Vaccine & Cystinosis: Statement

Members of the CRN’s Medical Advisory Board and Scientific Advisory Board weighed in on their thoughts regarding the COVID-19...

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CRN + PCs for People Offer Free Computers, Internet Access

Now more than ever, our world relies on technology to stay connected. The Cystinosis Research Network (CRN) has partnered...

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AVROBIO: Cystinosis Gene Therapy Update Functional & Clinical Improvements Reported

November 17, 2020 – AVROBIO announced that data suggests functional and clinical improvements for the first cystinosis patient at...

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Update: Cystaran Eye Drop Shortage

As of today, November 12th, AllianceRx Walgreens Prime is unable to fulfill any orders of CYSTARAN. Leadiant’s full announcement...

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New Details Announced: CYSTADROPS U.S. Website Launched

Recordati Rare Diseases Inc., the makers of CYSTADROPS, launched a website to support the launch of the eye treatment...

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CYSTARAN Eye Drop Shortage Anticipated

In a statement from Leadient Biosciences on October 9th, the company announced an availability shortage may impact cystinosis patients...

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Playback – 2020 International Cystinosis Family Conference 

In April, the Cystinosis Network Europe adapted their international conference to the restrictions set forth by COVID-19. The result...

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Recordati Announces Availability of CYSTADROPS in the U.S.

Beginning September 15, 2020, Recordati Rare Diseases announced the availability of CYSTADROPS across the United States. CYSTADROPS are a...

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