en English▼
X
ar Arabicbn Bengalizh-CN Chinese (Simplified)cs Czechda Danishnl Dutchen Englishtl Filipinofi Finnishfr Frenchde Germanel Greekht Haitian Creolehaw Hawaiianiw Hebrewhi Hindihu Hungarianid Indonesianit Italianja Japaneseko Koreanla Latinlt Lithuanianno Norwegianfa Persianpl Polishpt Portuguesepa Punjabiru Russiansr Serbiansk Slovaksl Slovenianes Spanishsw Swahilisv Swedishth Thaitr Turkishuk Ukrainianvi Vietnamesecy Welsh
For HCPs Donate

Author: cystinosisrn

Search
Generic filters
Exact matches only

Cystinosis Mexico Hosts 2nd Medical Training

San Miguel de Allende, Mexico was the setting for Cystinosis Mexico’s training course August 26 – 28. Nephrologists, ophthalmologists...

read more

CNE Conference Recordings

The organization of the 3rd Cystinosis Network Europe (CNE) International Cystinosis Conference would like to offer all interested parties...

read more

In Memoriam: Dr. Jerry Schneider

This past winter we lost a revolutionary in the cystinosis world, Dr. Jerry Schneider. During his time at the...

read more

AVROBIO Reports Positive Data From Phase 1/2 Clinical Trial of Investigational Gene Therapy for Cystinosis, Including New Interim Data on Neurocognitive Measures

Press release originally published May 17, 2022 on Avrobio.com. New early data show key visual motor integration, visual perception...

read more

Cystinosis Warrior Impact Program

In honor of 5th Annual Cystinosis Awareness Day a new global initiative has been announced: the Cystinosis Warrior Impact...

read more

Q & A on Cystaran Eye Drops

Leadiant, the makers of Cystaran eye drops, are opening up the floor for a Town Hall Q&A on Wednesday,...

read more

Study Participants Needed: The Effect of Exercise on Muscle Dysfunction in Cystinosis

Clinical researchers from the Stanford Neuromuscular department are looking for individuals who have been diagnosed with Cystinosis Myopathy, to...

read more

CYSTARAN Eye Drops Back In Stock

On Wednesday, April 13, Leadiant Biosciences confirmed CYSTARAN eye drops are available for those who qualify. Along with a...

read more

Newborn Screening: Review of its Impact for Cystinosis

Could newborn screening provide a turning point in the natural history of cystinosis? Review the latest publication “Newborn Screening: Review of...

read more

*NEWS* Leadiant Announces Cystaran Approval

Leadiant Biosciences, Inc. received communication from the FDA that they have approved the new Cystaran bottle and manufacturer. Please...

read more

Support

Let us help connect you with other individuals/families near you.

Learn More

News & Events

See what’s going on in the cystinosis community.

Read More

Donate

Your contribution funds research for improved treatments, and ultimately, a cure for cystinosis.

Donate