cystinosisrn

Pet Fundraiser Benefitting Adults with Cystinosis

The Adult Leadership Advisory Board (ALAB) created custom designed bandanas for your furry friends. Your donation provides support for...

After four years without an in person meeting, we invite you to strap on your boots for a trip...

Cystinosis patients and caregivers are invited to participate in a study focused on measuring health-related quality of life (HrQoL)....

Men 18+ living with nephropathic cystinosis are currently being recruited for a research study, Clinical and Molecular Assessments of...

The Cystinosis Research Network announces the expansion of our Board with two new Directors. Their experience, perspectives and dedication...

San Miguel de Allende, Mexico was the setting for Cystinosis Mexico’s training course August 26 – 28. Nephrologists, ophthalmologists...

The organization of the 3rd Cystinosis Network Europe (CNE) International Cystinosis Conference would like to offer all interested parties...

This past winter we lost a revolutionary in the cystinosis world, Dr. Jerry Schneider. During his time at the...

Press release originally published May 17, 2022 on Avrobio.com. New early data show key visual motor integration, visual perception...

A global initiative has been announced: the Cystinosis Warrior Impact Program. Our goal is to support, help or find...