February 28, 2018 Gear up for Rare Disease Day and request your FREE cystinosis ribbon temporary tattoo and start...
read moreThe Cystinosis Ireland Seedcorn Funding scheme aims to provide researchers with the opportunity to generate solid preliminary data which...
read moreSupport Bill Brink, an adult living with cystinosis, as he hosts “Stand Up to Cystinosis” a friendly weight lifting...
read moreLiving with cystinosis has earned Chandler Moore a few battle wounds. After mulling over a way to symbolize the...
read moreThis year, scholarships were provided to four deserving students. Read more
read moreCystinosis expert, Dr. William Gahl Among Distinguished Inductees Extracted from National Academy of Medicine. Access full article here. The...
read moreRI-MUHC’s researchers increase efforts to eradicate rare genetic disorder in children thanks to Génome Québec and Genome Canada Pulblished...
read moreSpread cystinosis awareness on Rare Disease Day, Cystinosis Awareness Day and all year long! We’ve transformed the cystinosis awareness...
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