Cystinosis Awareness Day 2026
May 7, 2026
Join the Cystinosis Awareness Day Movement!
Honor our 2,000 warriors in the most meaningful way to you. Let’s educate, raise awareness and raise funds.
The 9th Annual Cystinosis Awareness Day (CAD) is May 7th or 5/7. 57 refers to the 57kb deletion in the CTNS gene, the most common genetic cause of nephropathic cystinosis.
#WhatIsYour57?
What is your motivation? What keeps you going? Whether it’s sharing a post, starting a conversation, fundraising, or simply showing support. Every action makes a difference.
Example:
This Cystinosis Awareness Day, I’m sharing my 57, my motivation.
What keeps me going is ______.
This May 7th, I share it to honor the cystinosis community. #CAD2026 #WhatIsYour57
To donate via our secure, tax-deductible form, click here.
Together, let’s educate, raise awareness, and raise funds in our own ways, all toward the same goal.
