Rare Disease Day 2026
February 28
Taking place on the last day of February, Rare Disease Day is a global movement which aims to promote equity in social opportunities, healthcare, and access to diagnosis and therapies for individuals living with rare diseases.
Check back for details on how to be a part of the CRN’s Rare Disease Day Campaign to help raise awareness and opportunities for those living with cystinosis on and leading up to February 28, 2026.

