Fundraising Events

List of events in Photo View

• CRN Golf Tournament: Myrtle Beach

  Aug 14

  CRN Golf Tournament: Myrtle Beach

  Featured 9:00 am - 2:45 pm

  $60
• Cystinosis Sessions: January Video Call

  Jan 8

  Cystinosis Sessions: January Video Call

  4:00 pm - 5:00 pm
• A Benefit for Elle

  Jan 16

  A Benefit for Elle

  Featured 1:00 pm - 6:00 pm
• Rare Disease Day 2022

  Feb 28

  Rare Disease Day 2022

  Featured All day
• 2nd Annual SC Golf Fundraiser

  Jun 18

  2nd Annual SC Golf Fundraiser

  Featured 9:00 am - 2:00 pm

  $65
• Rare Disease Day 2023

  Feb 28

  Rare Disease Day 2023

  All day
• Informational Q&A: Cystinosis QoL Study

  Mar 9

  Informational Q&A: Cystinosis QoL Study

  10:00 am - 11:00 am
• Cystinosis Awareness Day

  May 7

  Cystinosis Awareness Day

  All day
• Rare Disease Day 2024

  Feb 29

  Rare Disease Day 2024

  All day
• Cystinosis Awareness Day

  May 7

  Cystinosis Awareness Day

  All day