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Cystinosis Awareness Day
May 7
On May 7, 2023 the cystinosis community will come together in honor of Cystinosis Awareness Day (CAD). Now in it’s sixth year, CAD is a global effort to raise funds and educate the general population about this disease. This year’s campaign will include testimonials from cystinosis warriors, caregivers/family members and international cystinosis organizations. In addition, we will feature physicians and rare partner organizations who’ve teamed up to amplify our message.
How will you spread the word? Here are some ideas to get you started:
- “One Thing” Campaign. Share the one thing you wish everyone knew about cystinosis
- Nominate yourself or a fellow cystinosis warrior for the Cystinosis Warrior Impact Program
- Share your cystinosis odyssey or pass along information from our website
- Volunteer for cystinosis research studies
- Start a cystinosis fundraiser. Facebook and Instagram make this easy or contact Jonathan Dicks on how to host an event (jdicks@cystinosis.org)
- Visit our general list on How to Help
- To donate, click here
If you would like to volunteer to become and event ambassador, please email info@cystinosis.org.
