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Cystinosis Awareness Day

May 7

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On May 7, 2023 the cystinosis community will come together in honor of Cystinosis Awareness Day (CAD). Now in it’s sixth year, CAD is a global effort to raise funds and educate the general population about this disease.

Join NORD for the “Living Rare, Living Stronger” Patient & Family Forum. A great way to advocate for cystinosis and rare diseases leading up to CAD. On May 6th, NORD will host in-person and virtual topics likely to include:

• Finding and Living Your New Normal with a Rare Disease
• Drug Development for Rare Diseases
• Rare Breakthroughs: Now and On the Horizon

Follow us for more information leading up to the event. If you would like to volunteer to become and event ambassador, please email info@cystinosis.org.