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Cystinosis Awareness Day

May 7

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On May 7, 2023 the cystinosis community will come together in honor of Cystinosis Awareness Day (CAD). Now in it’s sixth year, CAD is a global effort to raise funds and educate the general population about this disease. This year’s campaign will include testimonials from cystinosis warriors, caregivers/family members and international cystinosis organizations. In addition, we will feature physicians and rare partner organizations who’ve teamed up to amplify our message.

How will you spread the word? Here are some ideas to get you started:

If you would like to volunteer to become and event ambassador, please email info@cystinosis.org.


Cystinosis Research Network
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