Gatherings/Conferences

Name: 2027 CRN Family Conference
Start: 2027-07-22T00:00:00+00:00
End: 2027-07-24T23:59:59+00:00
Location: Charlotte Marriott City Center

October 2026
October Zoom Night – Cystinosis and Aging

October 6 @ 8:00 pm - 9:00 pm

Virtual Event

Aging with cystinosis brings new questions, challenges, and experiences. Co-hosts Cheryl and Hannah (living with cystinosis) will dive into topics inspired by ongoing conversations happening now across the cystinosis community. Please add to your calendars and follow us here and on socials for updates. Oct 6 @ 8p et / 7p ct / 5p pt […]
November 2026
CRN Scientific Symposium

November 13 @ 8:00 am - 6:00 pm

Weber's Hotel Ann Arbor, MI 3050 Jackson Avenue, Ann Arbor, MI, United States

The Cystinosis Research Network will host a Scientific Symposium in Ann Arbor, MI, bringing together researchers, clinicians, and various professionals interested in advancing cystinosis care. We are honored to welcome […]
July 2027
2027 CRN Family Conference

July 22, 2027 - July 24, 2027

Charlotte Marriott City Center 100 West Trade Street, Charlotte, NC, United States

Join us in the heart of Uptown Charlotte. CRN Family Conferences draw some of the largest gatherings of cystinosis families in the world. The weekend-long agenda creates a space for […]

October 2026

November 2026

July 2027