August Zoom Call
August cystinosis Zoom call discussions will be shaped by your questions and priorities. Chelsea Meschke, VP of Family Support, is our host on August 11 at 8p ET / 7p […]
4 events found.
Events
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October Zoom Night – Cystinosis and Aging
Virtual EventAging with cystinosis brings new questions, challenges, and experiences. Co-hosts Cheryl and Hannah (living with cystinosis) will dive into topics inspired by ongoing conversations happening now across the cystinosis community. […]
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2026 CRN Scientific Symposium
Weber's Hotel Ann Arbor, MI 3050 Jackson Avenue, Ann Arbor, MI, United StatesAdvancing the Future of Cystinosis Care. The CRN Scientific Symposium brings together physicians, clinicians, researchers, and scientists for a peer-to-peer exploration of emerging developments in cystinosis and lysosomal storage disorders. […]
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2027 CRN Family Conference
Charlotte Marriott City Center 100 West Trade Street, Charlotte, NC, United StatesJoin us in the heart of Uptown Charlotte. CRN Family Conferences draw some of the largest gatherings of cystinosis families in the world. The weekend-long agenda creates a space for […]
