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Name: Cystinosis Sessions: July Video Call
Start: 2022-07-09T16:00:00+00:00
End: 2022-07-09T17:00:00+00:00

May 2020
Live Video Conference: Dependence, Education & Employment

May 2, 2020 @ 4:00 pm - 5:30 pm

Join the LIVE video conference session on May 2nd!
June 2020
Cystinosis Sessions: Overcoming Limitations & Goal Setting

June 6, 2020 @ 12:00 pm - 1:30 pm

The third live video conference takes place June 6 at 12:00 pm ET. The Adult Leadership Advisory Board (adults living with cystinosis) will host the event. Topics will include: Facing challenges Peer pressure Limitations & how to overcome them Goal setting Downloading Zoom/Video Conference Prep Secure access to a mobile device (PC, Apple, Android), desktop […]
October 2021
Cystinosis Sessions: October Video Call

Featured October 2, 2021 @ 4:00 pm - 5:00 pm

Saturday, October 2nd at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB) for a Zoom discussion. Chat with others in the cystinosis community about current events, travel and vacation […]
April 2022
Cystinosis Sessions: April Video Call

Featured April 9, 2022 @ 4:00 pm - 5:00 pm

Diet and exercise will be the next topics of conversation during the Cystinosis Sessions quarterly Zoom call. Join our Adult Leadership Advisory Board Saturday, April 9 at 4:00pm ET. This […]
July 2022
Cystinosis Sessions: July Video Call

July 9, 2022 @ 4:00 pm - 5:00 pm

Founding ALAB member, Brian Ensor shares his first-hand experiences with the AstraZeneca Vaccination Study. Join the Zoom call Saturday, July 9 at 4:00pm ET. Agenda items include the AZ study, […]