conference

Name: 2023 Family Conference – Nashville
Start: 2023-07-13T00:00:00+00:00
End: 2023-07-15T23:59:59+00:00
Location: Nashville Marriott at Vanderbilt University

September 2019
September 18, 2019 - September 20, 2019

Global Genes: Rare Patient Advocacy Summit

Sheraton San Diego Hotel & Marina 1380 Harbor Island Drive, San Diego, CA, United States

On behalf of the cystinosis community, CRN advocates will attend this rare disease summit to absorb information on the latest therapies and research and participate in collaborative workshops. Global Genes has more information on their website and FAQs page. "As the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders […]
November 2019
November 5, 2019 - November 10, 2019

American Society of Nephrology – Kidney Week

Walter E. Washington Convention Center, Washington, DC, USA 801 Mt Vernon Pl NW, Washington, United States

CRN will join the American Society for Nephrology (ASN) and more than 13,000 other kidney professionals from across the globe at Kidney Week 2019 in Washington, DC. The world’s premier nephrology meeting, Kidney Week provides participants exciting and challenging opportunities to exchange knowledge, learn the latest scientific and medical advances, and listen to engaging and […]
April 2020
April 25, 2020 @ 7:00 am - 3:00 pm

Virtual: Cystinosis Network Europe 2020 International Conference

Following much consideration, Cystinosis Network Europe (CNE) and Cystinosis Ireland have decided to cancel the in-person International Cystinosis Conference planned for Dublin in July 2020 due the ongoing situation with COVID-19. The International Cystinosis Family Conference is now taking place online! On April 25th from 7am to 3pm ET you will have access to this […]
April 2021
April 30, 2021 - June 4, 2021

CRN at 2021 Virtual PAS

The Pediatric Academic Societies (PAS) connects thousands of pediatricians and other health care providers worldwide. This international gathering, delivered virtually in 2021, offers opportunities for a global audience of physician-scientists, clinicians, and educators to share research, explore new ideas, build career opportunities, and collaborate on future projects. Presentations cover issues of interest to generalists as […]
July 2021
July 10, 2021 @ 4:00 pm - 5:00 pm

Cystinosis Sessions: July Video Call

The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on July 10th at 4pm ET. TOPICS The conversation topics include returning to the workplace after COVID-19 and the CRN Virtual Conference (held July 16-18, 2021). To join, click: https://zoom.us/j/2663523786 Meeting ID: 266 352 3786 Here are instructions to help with downloading Zoom. […]
August 2021
August 7, 2021 @ 4:00 pm - 5:00 pm

Cystinosis Sessions: August Video Call

The Adult Leadership Advisory Board (ALAB) invites you to join the conversation on August 7th at 4pm ET. The video call with be hosted via Zoom. TOPICS ALAB members will lead a discussion about the CRN Virtual Conference (held July 16-18, 2021). To join, click: https://zoom.us/j/2663523786 Meeting ID: 266 352 3786 Here are instructions to help […]
July 2022
Featured July 7, 2022 - July 10, 2022

CNE International Conference

MTC1 Maria-Theresiacollege Sint-Michielsstraat 6, 3000 Leuven, Belgium

This summer, Cystinosis Network Europe (CNE) will host an International Conference July 7-10 in Leuven, Belgium. The conference will be segmented into a scientific meeting on July 7 with the family conference running July 8-10. Access details here including: Conference website Registration page Hotel and lodging info Session details click here Questions? Email cystinose@ziggo.nl Call […]
July 2023
July 13, 2023 - July 15, 2023

2023 Family Conference – Nashville

Nashville Marriott at Vanderbilt University 2555 West End Avenue, Nashville, TN, United States

The CRN Family Conference is back...and in-person for the summer of 2023. Join us July 13 - July 15 in Nashville, Tennessee. The event will take place at the Nashville Marriott at Vanderbilt University. For agenda, travel scholarships and more details, click here. We look forward to seeing you there!

September 2019

November 2019

April 2020

April 2021

July 2021

August 2021

July 2022

July 2023