COVID

Name: Cystinosis Sessions: January Video Call
Start: 2021-01-02T16:00:00+00:00
End: 2021-01-02T17:30:00+00:00

January 2021
January 2, 2021 @ 4:00 pm - 5:30 pm

Cystinosis Sessions: January Video Call

All are invited to join as the Adult Leadership Advisory Board hosts our live January video call. This session will touch on the battles and victories associated with cystinosis. Everyone is welcome. Topics include but are not limited to: Difficulties coping during COVID and school Tension between parents, siblings and children ALAB experiences with parental […]