List of events in Photo View

• A Benefit for Elle

  Jan 16

  A Benefit for Elle

  Featured 1:00 pm - 6:00 pm
• Rare Disease Day 2022

  Feb 28

  Rare Disease Day 2022

  Featured All day
• Cystinosis Sessions: April Video Call

  Apr 9

  Cystinosis Sessions: April Video Call

  Featured 4:00 pm - 5:00 pm
• 5th Annual Cystinosis Awareness Day

  May 7

  5th Annual Cystinosis Awareness Day

  Featured All day
• 2nd Annual SC Golf Fundraiser

  Jun 18

  2nd Annual SC Golf Fundraiser

  Featured 9:00 am - 2:00 pm

  $65
• Rare Disease Day 2024

  Feb 29

  Rare Disease Day 2024

  All day
• Cystinosis Awareness Day

  May 7

  Cystinosis Awareness Day

  All day
• Family Zoom Night – February

  Feb 11

  Family Zoom Night – February

  Virtual Event

  6:30 pm - 7:30 pm
• 2025 CRN Family Conference

  Jul 11

  2025 CRN Family Conference

  July 11, 2025 - July 13, 2025
• Zoom Night – September

  Sep 16

  Zoom Night – September

  Virtual Event

  7:30 pm - 8:30 pm