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5th Annual Cystinosis Awareness Day

May 7

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On May 7, 2022 we celebrate the 5th Annual Cystinosis Awareness Day.

This is an opportunity to educate the world about cystinosis, a rare disease that impacts 2,000 patients and their loved ones. Please join us in commemorating this event. Here are a few suggestions on how to participate:

  • Check out the Cystinosis Warrior Impact Program. A brand new initiative aimed at impacting each and every person living with cystinosis.
  • Awareness Day Giveaway. As a thank you for growing with the CRN, we are sending plantable awareness ribbons loaded with wildflower seeds. Request yours here.
  • Advocate. Share a snapshot or your perspective on living cystinosis with the people around you; in person or online with #cystinosisaware.
  • Research. Volunteer for research studies or make a donation.
  • For more information or additional ideas, email info@cystinosis.org.

We appreciate your support!