education

Name: Cystinosis Awareness Day 2026
Start: 2026-05-07T00:00:00+00:00
End: 2026-05-07T23:59:59+00:00

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Cystinosis Awareness Day 2026

May 7

This year marks the 9th Annual Cystinosis Awareness Day. Inspired by the 57kb deletion in the CTNS gene, the most common cause of nephropathic cystinosis, the day has grown into a global moment of recognition, awareness, and action. Join us in answering... What's your 57? Ways to participate: 57 voices What’s your 57? The reason […]