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  • August 2021

  • Sat 7
    August 7, 2021 @ 4:00 pm - 5:00 pm

    Cystinosis Sessions: August Video Call

    The Adult Leadership Advisory Board (ALAB) invites you to join the conversation on August 7th at 4pm ET. The video call with be hosted via Zoom. TOPICS ALAB members will lead a discussion about the CRN Virtual Conference (held July 16-18, 2021). To join, click: https://zoom.us/j/2663523786 Meeting ID: 266 352 3786 Here are instructions to help […]

  • September 2021

  • Sat 11
    Featured September 11, 2021 @ 4:00 pm - 5:00 pm

    Cystinosis Sessions: September Video Call

    Saturday, September 11th at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB) for a Zoom discussion. TOPICS  The month's central topic is COVID-19 and vaccines. This is a fluid discussion and will include the latest CDC announcements, mental and physical well-being, side effects encountered after receiving COVID-19 vaccines, the booster shot available for immunocompromised […]

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