Cystinosis Sessions: Coronavirus, Medication
Join the first video conference session created by the Adult Leadership Advisory Board - Saturday, March 21 at 4pm ET.
4 events found.
eye drops
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Cystinosis Sessions:
Saturday, December 5th at 12:00 pm ET, the Adult Leadership Advisory Board (ALAB) will host a live video conference. This month's topics include the holidays, COVID-19 and eye drops. Join Zoom Meeting https://zoom.us/j/2663523786 Meeting ID: 266 352 3786 Here are instructions to help with downloading Zoom. We recommend completing these steps prior to the call. […]
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Cystaran Town Hall: Product Shortage 2021 Expectations
Leadiant Biosciences, the distributor of CYSTARAN, is sponsoring a Town Hall meeting on February 3rd. The cystinosis community is invited to attend the event where the following topics will be addressed: Cystaran shortage updates Next steps and what to anticipate Important contact information Questions from the community Registration is open here until the event begins, […]
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Cystaran Eye Drops Virtual Town Hall
On Wednesday April 27, Leadiant Biosciences and AllianceRx Walgreens Prime invite the cystinosis community to attend a virtual Town Hall. With Cystaran eye drops back in stock, the discussion agenda will cover recent approval and availability and an interactive Q&A session. Open to residents of the U.S. Questions can be submitted in advance to cgreeley@cystinosis.org […]
