learning

Name: 2026 CRN Regional Family Meetup
Start: 2026-05-02T08:30:00+00:00
End: 2026-05-02T17:00:00+00:00
Location: Hyatt Place St Johns Town Center

April 2020
Virtual: Cystinosis Network Europe 2020 International Conference

April 25, 2020 @ 7:00 am - 3:00 pm

Following much consideration, Cystinosis Network Europe (CNE) and Cystinosis Ireland have decided to cancel the in-person International Cystinosis Conference planned for Dublin in July 2020 due the ongoing situation with COVID-19. The International Cystinosis Family Conference is now taking place online! On April 25th from 7am to 3pm ET you will have access to this […]
July 2021
2021 CRN Summer Online Conference

Featured July 16, 2021 @ 6:00 pm - July 18, 2021 @ 3:45 pm

Mark your calendars for the 2021 CRN Family Conference!
May 2026
2026 CRN Regional Family Meetup

May 2 @ 8:30 am - 5:00 pm

Hyatt Place St Johns Town Center 4742 Town Center Parkway, Jacksonville, FL, United States

Family and friends within driving distance of Jacksonville, Florida, do not want to miss this event! Open to those living with cystinosis and their loved ones, the 2026 CRN Regional Family Meetup is an intimate gathering designed to connect, inform and strengthen our cystinosis community. Hosted by Chelsea Meschke, LMSW, CRN VP of Family Support […]

$20

April 2020

July 2021

May 2026