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3 events found.

living with cystinosis

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  2. living with cystinosis

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  • May 2020

  • Sat 2
    May 2, 2020 @ 4:00 pm - 5:30 pm

    Live Video Conference: Dependence, Education & Employment

    Join the LIVE video conference session on May 2nd!

  • June 2020

  • Sat 6
    June 6, 2020 @ 12:00 pm - 1:30 pm

    Cystinosis Sessions: Overcoming Limitations & Goal Setting

    The third live video conference takes place June 6 at 12:00 pm ET. The Adult Leadership Advisory Board (adults living with cystinosis) will host the event. Topics will include: Facing challenges Peer pressure Limitations & how to overcome them Goal setting Downloading Zoom/Video Conference Prep Secure access to a mobile device (PC, Apple, Android), desktop […]

  • October 2020

  • Tue 6
    October 6, 2020 @ 7:00 pm - 8:30 pm

    Cystinosis & Mental Health: Virtual Meetup

    Let's have an open discussion on mental health and living with cystinosis. Everyone within the community is invited! Licensed psychologist, Dr. Cortney Taylor Zimmerman will guide the meetup. Register today at https://us02web.zoom.us/webinar/register/WN_Gw1Wxj3oQkCi00OpR2WFPQ. Welcome kits are here - with limited availability.

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