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Name: Cystinosis Sessions: January Video Call
Start: 2021-01-02T16:00:00+00:00
End: 2021-01-02T17:30:00+00:00

September 2020
Caregivers Connect: Virtual Meetup

September 19, 2020 @ 5:00 pm - 6:30 pm

Caregivers of children with cystinosis under 18 years old are invited. Join us for a video conference to connect with other caregivers. This is a free networking opportunity. Register at https://us02web.zoom.us/meeting/register/tZUpde2tqj8uH9yGl5nmGG6v1TvprXaLgtOV. FREE welcome kits - limited availability. We hope to see you there!
January 2021
Cystinosis Sessions: January Video Call

January 2, 2021 @ 4:00 pm - 5:30 pm

All are invited to join as the Adult Leadership Advisory Board hosts our live January video call. This session will touch on the battles and victories associated with cystinosis. Everyone is welcome. Topics include but are not limited to: Difficulties coping during COVID and school Tension between parents, siblings and children ALAB experiences with parental […]