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  • February 2023

  • Tue 28
    February 28, 2023

    Rare Disease Day 2023

    February 28, 2023 is Rare Disease Day. A movement created by Eurordis, Rare Disease Day unites an international community and promotes progress for all those affected. Rare Disease Day raises awareness for the 300 million people living with rare disease around the world and their families and carers; including our 2,000 cystinosis warriors. Here are […]

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