virtual

Cystinosis & Mental Health: Virtual Meetup

Oct 6

Cystinosis & Mental Health: Virtual Meetup

7:00 pm - 8:30 pm
Cystinosis Gene Therapy & Research Updates: Virtual Meetup

Oct 14

Cystinosis Gene Therapy & Research Updates: Virtual Meetup

7:00 pm - 8:30 pm
LLLFF Virtual 5K

Nov 1

LLLFF Virtual 5K

All day
CRN at 2021 Virtual PAS

Apr 30

CRN at 2021 Virtual PAS

April 30, 2021 - June 4, 2021
2021 CRN Summer Online Conference

Jul 16

2021 CRN Summer Online Conference

Featured July 16, 2021 @ 6:00 pm - July 18, 2021 @ 3:45 pm
Rare Disease Day 2022

Feb 28

Rare Disease Day 2022

Featured All day
Cystaran Eye Drops Virtual Town Hall

Apr 27

Cystaran Eye Drops Virtual Town Hall

8:00 pm - 9:00 pm
Cystinosis Sessions: July Video Call

Jul 9

Cystinosis Sessions: July Video Call

4:00 pm - 5:00 pm
Adult May Meetup – Mental Wellness

May 19

Adult May Meetup – Mental Wellness

7:00 pm - 8:00 pm
Adult July Meetup – Disability and Cystinosis

Jul 29

Adult July Meetup – Disability and Cystinosis

3:00 pm - 4:00 pm