The Adult Leadership Advisory Board introduces the topic of Family Planning with Cystinosis to their monthly meetup series....
read moreCRN’s Adult Leadership Advisory Board will host a Q&A with Levi Peterson and Samantha Saver of Patients Rising. Tap...
read moreCelebrate Halloween from home this year. ALAB invites you to a free, online event that will test your spooky...
read moreTest your knowledge of everything Halloween. ALAB members are hosting a free, online trivia night. October 29th at 8:30pm...
read moreIn recognition of Rare Disease Day 2023, the Adult Leadership Advisory Board compiled thoughts from a few cystinosis warriors....
read moreThe Adult Leadership Advisory Board (ALAB) created custom designed bandanas for your furry friends. Your donation provides support for...
read moreFounding ALAB member, Brian Ensor shares his first-hand experiences with the AstraZeneca Vaccination Study. Join the Zoom call Saturday,...
read moreDiet and exercise will be the next topics of conversation during the Cystinosis Sessions quarterly Zoom call. Join our...
read moreThe Adult Leadership Advisory Board (ALAB) continues their podcast series “Cystinosis Rare: Journey Into the Unknown” with episode 8...
read moreSaturday, January 8th at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB). Discuss mental toughness and ways to...
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