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Cystinosis Sessions: July Video Call

Founding ALAB member, Brian Ensor shares his first-hand experiences with the AstraZeneca Vaccination Study. Join the Zoom call Saturday,...

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Cystinosis Sessions: April Video Call

Diet and exercise will be the next topics of conversation during the Cystinosis Sessions quarterly Zoom call. Join our...

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Cystinosis Sessions: October Video Call

Saturday, October 2nd at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB) for a Zoom discussion. Chat with...

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Adults with Cystinosis Lead Video Conference Series

In the third episode of “Cystinosis Sessions,” a live video conference series created by adults living with cystinosis, topics...

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Cystinosis Sessions: Overcoming Limitations & Goal Setting

The third live video conference takes place June 6 at 12:00 pm ET. The Adult Leadership Advisory Board (adults...

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Live Video Conference: Dependence, Education & Employment

Join the LIVE video conference session on May 2nd!

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Inspirational Stories

Our community is small but mighty! Hear about our triumphs.

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