The Pediatric Academic Societies (PAS) connects thousands of pediatricians and other health care providers worldwide. This international gathering, delivered...
read moreWe are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...
read moreOn Thursday, July 2nd, the CRN announced a face mask fundraiser to help create awareness, bring in donations and...
read moreJoin the LIVE video conference session on May 2nd!
read moreThe person I’m most grateful for is my sister Jennifer. Six and a half years ago my labs were...
read moreI first heard of cystinosis in 2016. It was Spring, I felt. Or it should have been—life metamorphoses are...
read moreWhat started as a cystinosis awareness effort turns into a life-changing encounter. It all started with Jana (my twin...
read moreThe CRN is a proud participant in Giving Tuesday – a global movement encouraging people to “do good.” This...
read moreGlobal Genes 2019 RARE Patient Advocacy Summit was attended by members of our cystinosis community. Natasha Faisca and Clinton...
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