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My Definition of Cystinosis By Ana Francisco

I first heard of cystinosis in 2016. It was Spring, I felt. Or it should have been—life metamorphoses are...

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Strangers Brought Together by Destiny by Sara Healy

What started as a cystinosis awareness effort turns into a life-changing encounter. It all started with Jana (my twin...

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American Society of Nephrology – Kidney Week

CRN will join the American Society for Nephrology (ASN) and more than 13,000 other kidney professionals from across the...

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Cystinosis Perspective: RARE Patient Advocacy Summit

Global Genes 2019 RARE Patient Advocacy Summit was attended by members of our cystinosis community. Natasha Faisca and Clinton...

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Ringing in the Future: 2019 Conference Highlights

People from around the world joined the CRN Family Conference this summer to help “Ring in the Future”. Here...

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Global Genes: Rare Patient Advocacy Summit

On behalf of the cystinosis community, CRN advocates will attend this rare disease summit to absorb information on the...

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