rare disease

A Cystinosis Journey by Gail Potts

My daughter, Deanna Lynn, was diagnosed with cystinosis 46 years ago in Houston, TX. At that time I did...

The CRN is a proud participant in Giving Tuesday – a global movement encouraging people to “do good.” This...

Global Genes 2019 RARE Patient Advocacy Summit was attended by members of our cystinosis community. Natasha Faisca and Clinton...

People from around the world joined the CRN Family Conference this summer to help “Ring in the Future”. Here...

On behalf of the cystinosis community, CRN advocates will attend this rare disease summit to absorb information on the...

In order to think of what Cystinosis Awareness Day means to me I had to think about what cystinosis...