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Supporting Families Affected by Nephropathic Cystinosis: DNAcheckup & Dante Lab Partnership

Genetic testing is now being offered to cystinosis families at a discounted rate.  However, you may be wondering, who...

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WBC Kits

A white blood cell (WBC) test helps monitor cystine levels important in managing cystinosis. Information about the test and...

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Let us help connect you with other individuals/families near you.

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See what’s going on in the cystinosis community.

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Your contribution funds research for improved treatments, and ultimately, a cure for cystinosis.

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