volunteer

Recruiting for Health-Related Quality of Life Study

Cystinosis patients and caregivers are invited to participate in a study focused on measuring health-related quality of life (HrQoL)....

The Cystinosis Research Network announces the expansion of our Board with two new Directors. Their experience, perspectives and dedication...

Clinical researchers from the Stanford Neuromuscular department are looking for individuals who have been diagnosed with Cystinosis Myopathy, to...

The Cystinosis Research Network has announced new board member updates. At the last Board Meeting, the nominating committee proposed...

The CRN is a proud participant in Giving Tuesday – a global movement encouraging people to “do good.” This...