December Zoom Night- Navigating Rare During the Holidays
December 8 @ 7:00 pm - 8:00 pm
Join us on Tuesday, December 8th for a Cystinosis Zoom Night. This is a welcome space open to everyone impacted by cystinosis. Our primary topic is Navigating a Rare Disease During the Holidays. We’ll talk about travel, planning when away from typical routines, stress, added social gatherings, and anything that is on your mind.
Reminder: This call is intended to be a space for people and families affected by cystinosis to connect, share experiences, and learn from one another.
We ask that while respecting those experiences we keep the conversation focused so we can make the most of our time together. Thank you for helping us keep this a supportive space for everyone.
- Tuesday, December 8, 2026
- 7:00pm Eastern
- Host: Chelsea Meschke, VP of Family Support
- Join the Zoom call by clicking/saving this link
Questions? Message Chelsea at chelseam@cystinosis.org. We look forward to seeing you then.
