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Symbol of Eternal Support: Father Gets Tattoos of Son’s Scars

Living with cystinosis has earned Chandler Moore a few battle wounds. After mulling over a way to symbolize the...

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2018 Scholarships Awarded

This year, scholarships were provided to four deserving students. Read more

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National Academy of Medicine Elects New Members

Cystinosis expert, Dr. William Gahl Among Distinguished Inductees Extracted from National Academy of Medicine. Access full article here. The...

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No-Nonsense Approach to Genetic Kidney Disease in Children

RI-MUHC’s researchers increase efforts to eradicate rare genetic disorder in children thanks to Génome Québec and Genome Canada Pulblished...

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First Annual Cystinosis Awareness Day

Spread cystinosis awareness on Rare Disease Day, Cystinosis Awareness Day and all year long! We’ve transformed the cystinosis awareness...

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