Halloween Trivia Night
Test your knowledge of everything Halloween. ALAB members are hosting a free, online trivia night. October 29th at 8:30pm ET Jump on the Zoom call for a chance to win […]
10 events found.
Gatherings/Conferences
Events
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Health Insurance – Online Q&A
CRN's Adult Leadership Advisory Board will host a Q&A with Levi Peterson and Samantha Saver of Patients Rising. Tap into their experience navigating health insurance during this live session. Register […]
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Family Planning with Cystinosis
VirtualThe Adult Leadership Advisory Board introduces the topic of Family Planning with Cystinosis to their monthly meetup series. Are you an adult with cystinosis thinking about having a family? […]
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Cystinosis Awareness Day – Family Meetup
Cincinnati Marriott RiverCenter 10 W Rivercenter Blvd, Covington, Kentucky, United StatesSee you in Cincinnati, Ohio! On May 4th, we are gathering for an in-person meet-up at the Cincinnati Marriott River Center. Join us for a day of connection, education, and […]
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Adult May Meetup – Mental Wellness
May is Mental Health Awareness Month. Join the Adult Leadership Advisory Board to discuss the importance of mental wellness. Special guests include AJ Altman (Music Therapist) and Amanda Harmon (PhD […]
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Cystinosis Symposium: A Rare Disease Model for Comprehensive Care
The New York Academy of Medicine 1216 5th Ave, New York, NY, United StatesThe CRN is hosting an in-person event for healthcare professionals. Join us May 31, 2024 at The New York Academy of Medicine. Healthcare providers with a desire to learn more […]
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School Prep + Cystinosis (virtual)
A new school year is almost here. If you are preparing to send a child with cystinosis into the classroom, this meeting is for you! Join the Zoom call Monday, […]
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Cystinosis Network Europe International Conference
Manchester, England Manchester, United KingdomRegistration for the Cystinosis Network Europe (CNE) International Conference, hosted by Cystinosis Foundation UK in Manchester in July are now open! Register here. Scientific meeting agenda Family meeting agenda CNE […]
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Adult July Meetup – Disability and Cystinosis
VirtualFor Disability Pride Month, the Adult Leadership Advisory Board is hosting a Zoom call to discuss living with cystinosis and disability. Their special guest is Hannah Creel, a cystinosis warrior, […]
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Adults August Meetup
The Adult Leadership Advisory Board invites you to join their August meetup on Monday the 26th at 6p ET. This month's topic: Mental Health - Trauma. Special guest is Kerry […]