2026 CRN Regional Family Meetup
Family and friends within driving distance of Jacksonville, Florida, do not want to miss this event! Open to those living with cystinosis and their loved ones, the 2026 CRN Regional […]
$20
Family and friends within driving distance of Jacksonville, Florida, do not want to miss this event! Open to those living with cystinosis and their loved ones, the 2026 CRN Regional […]
Join the Cystinosis Awareness Day Movement! May 7th marks the 9th Annual Cystinosis Awareness Day (CAD). Inspired by the 57kb deletion in the CTNS gene (the most common genetic cause […]
Cystinosis Ireland hosts the Cystinosis Network Europe's International Conference on July 3, 2026. The Dublin event offers scientific and family sessions, child care, time for socialization and translation for seven […]