2026 CRN Regional Family Meetup
Family and friends within driving distance of Jacksonville, Florida, do not want to miss this event! Open to those living with cystinosis and their loved ones, the 2026 CRN Regional […]
$20
3 events found.
Gatherings/Conferences
Events
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Hyatt Place St Johns Town Center 4742 Town Center Parkway, Jacksonville, FL, United States
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Cystinosis Awareness Day 2026
Join the Cystinosis Awareness Day Movement! Honor our 2,000+ warriors in the most meaningful way to you. Let’s educate, raise awareness and raise funds. May 7th marks the 9th Annual Cystinosis Awareness Day (CAD). It started as a reference to the 57kb deletion in the CTNS gene, the most common genetic cause of nephropathic […]
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2026 Cystinosis Network Europe International Conference
Royal Marine Hotel, Dun Laoghaire Dublin, IrelandCystinosis Ireland hosts the Cystinosis Network Europe's International Conference on July 3, 2026. The Dublin event offers scientific and family sessions, child care, time for socialization and translation for seven […]
