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10 events found.

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  • Cystinosis Network Europe International Conference
    Jul 25
    July 25, 2024 - July 27, 2024

    Cystinosis Network Europe International Conference

  • Adult July Meetup – Disability and Cystinosis
    Jul 29
    3:00 pm - 4:00 pm

    Adult July Meetup – Disability and Cystinosis

  • Adults August Meetup
    Aug 26
    6:00 pm - 7:00 pm

    Adults August Meetup

  • Family Zoom Night – February
    Feb 11
    Virtual Event
    6:30 pm - 7:30 pm

    Family Zoom Night – February

  • Rare Disease Day 2025
    Feb 28
    All day

    Rare Disease Day 2025

  • Family Zoom Night – March
    Mar 18
    Virtual Event
    7:00 pm - 8:30 pm

    Family Zoom Night – March

  • Cystinosis Awareness Day 2025
    May 7
    All day

    Cystinosis Awareness Day 2025

  • 2025 CRN Family Conference
    Jul 11
    July 11 - July 13

    2025 CRN Family Conference

  • Zoom Night – September
    Sep 16
    Virtual Event
    7:30 pm - 8:30 pm

    Zoom Night – September

  • Zoom night – November
    Nov 18
    7:30 pm - 8:30 pm

    Zoom night – November

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