Events

List of events in Photo View

• Cystaran Eye Drops Virtual Town Hall

  Apr 27

  Cystaran Eye Drops Virtual Town Hall

  8:00 pm - 9:00 pm
• 5th Annual Cystinosis Awareness Day

  May 7

  5th Annual Cystinosis Awareness Day

  Featured All day
• 2nd Annual SC Golf Fundraiser

  Jun 18

  2nd Annual SC Golf Fundraiser

  Featured 9:00 am - 2:00 pm

  $65
• CNE International Conference

  Jul 7

  CNE International Conference

  Featured July 7, 2022 - July 10, 2022
• Cystinosis Sessions: July Video Call

  Jul 9

  Cystinosis Sessions: July Video Call

  4:00 pm - 5:00 pm
• Rare Disease Day 2023

  Feb 28

  Rare Disease Day 2023

  All day
• Informational Q&A: Cystinosis QoL Study

  Mar 9

  Informational Q&A: Cystinosis QoL Study

  10:00 am - 11:00 am
• Cystinosis Awareness Day

  May 7

  Cystinosis Awareness Day

  All day
• 2023 Family Conference – Nashville

  Jul 13

  2023 Family Conference – Nashville

  July 13, 2023 - July 15, 2023
• Halloween Trivia Night

  Oct 29

  Halloween Trivia Night

  8:30 pm - 9:30 pm