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Name: 5th Annual Cystinosis Awareness Day
Start: 2022-05-07T00:00:00+00:00
End: 2022-05-07T23:59:59+00:00

March 2020
Cystinosis Sessions: Coronavirus, Medication

March 21, 2020 @ 4:00 pm - 5:30 pm

Join the first video conference session created by the Adult Leadership Advisory Board - Saturday, March 21 at 4pm ET.
May 2020
Live Video Conference: Dependence, Education & Employment

May 2, 2020 @ 4:00 pm - 5:30 pm

Join the LIVE video conference session on May 2nd!
June 2020
Cystinosis Sessions: Overcoming Limitations & Goal Setting

June 6, 2020 @ 12:00 pm - 1:30 pm

The third live video conference takes place June 6 at 12:00 pm ET. The Adult Leadership Advisory Board (adults living with cystinosis) will host the event. Topics will include: Facing challenges Peer pressure Limitations & how to overcome them Goal setting Downloading Zoom/Video Conference Prep Secure access to a mobile device (PC, Apple, Android), desktop […]
July 2021
2021 CRN Summer Online Conference

Featured July 16, 2021 @ 6:00 pm - July 18, 2021 @ 3:45 pm

Mark your calendars for the 2021 CRN Family Conference!
May 2022
5th Annual Cystinosis Awareness Day

Featured May 7, 2022

On May 7, 2022 we celebrate the 5th Annual Cystinosis Awareness Day. This is an opportunity to educate the world about cystinosis, a rare disease that impacts 2,000 patients and their loved ones. Please join us in commemorating this event. Here are a few suggestions on how to participate: Check out the Cystinosis Warrior Impact […]