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Global Genes: Rare Patient Advocacy Summit

Sep 18

Global Genes: Rare Patient Advocacy Summit

September 18, 2019 - September 20, 2019
Podcast: Staying Positive while living with Cystinosis

Feb 29

Podcast: Staying Positive while living with Cystinosis

All day
Cystinosis Gene Therapy & Research Updates: Virtual Meetup

Oct 14

Cystinosis Gene Therapy & Research Updates: Virtual Meetup

7:00 pm - 8:30 pm
Cystinosis Sessions: August Video Call

Aug 7

Cystinosis Sessions: August Video Call

4:00 pm - 5:00 pm
Cystinosis Sessions: September Video Call

Sep 11

Cystinosis Sessions: September Video Call

Featured 4:00 pm - 5:00 pm
5th Annual Cystinosis Awareness Day

May 7

5th Annual Cystinosis Awareness Day

Featured All day
2023 Family Conference – Nashville

Jul 13

2023 Family Conference – Nashville

July 13, 2023 - July 15, 2023
Zoom night – November

Nov 18

Zoom night – November

7:30 pm - 8:30 pm