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Global Genes: Rare Patient Advocacy Summit

Sep 18

September 18, 2019 - September 20, 2019

Global Genes: Rare Patient Advocacy Summit
Podcast: Staying Positive while living with Cystinosis

Feb 29

All day

Podcast: Staying Positive while living with Cystinosis
Cystinosis Gene Therapy & Research Updates: Virtual Meetup

Oct 14

7:00 pm - 8:30 pm

Cystinosis Gene Therapy & Research Updates: Virtual Meetup
Cystinosis Sessions: August Video Call

Aug 7

4:00 pm - 5:00 pm

Cystinosis Sessions: August Video Call
Cystinosis Sessions: September Video Call

Sep 11

Featured 4:00 pm - 5:00 pm

Cystinosis Sessions: September Video Call
5th Annual Cystinosis Awareness Day

May 7

Featured All day

5th Annual Cystinosis Awareness Day
2023 Family Conference – Nashville

Jul 13

July 13, 2023 - July 15, 2023

2023 Family Conference – Nashville
Zoom night – November

Nov 18

7:30 pm - 8:30 pm

Zoom night – November