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Name: Cystinosis Sessions: March Video Call
Start: 2021-03-06T16:00:00+00:00
End: 2021-03-06T17:00:00+00:00

June 2020
Cystinosis Sessions: Overcoming Limitations & Goal Setting

June 6, 2020 @ 12:00 pm - 1:30 pm

The third live video conference takes place June 6 at 12:00 pm ET. The Adult Leadership Advisory Board (adults living with cystinosis) will host the event. Topics will include: Facing […]
October 2020
Cystinosis Sessions: Alternative Therapies, Exercise & Activities

October 3, 2020 @ 12:00 pm - 1:30 pm

Join hosts from the Adult Leadership Advisory Board (ALAB) for the Cystinosis Sessions video conference series - LIVE- on Saturday, October 3 at 12:00 pm ET. This open discussion will […]
December 2020
Cystinosis Sessions:

December 5, 2020 @ 12:00 pm - 1:30 pm

Saturday, December 5th at 12:00 pm ET, the Adult Leadership Advisory Board (ALAB) will host a live video conference. This month's topics include the holidays, COVID-19 and eye drops. Join […]
January 2021
Cystinosis Sessions: January Video Call

January 2, 2021 @ 4:00 pm - 5:30 pm

All are invited to join as the Adult Leadership Advisory Board hosts our live January video call. This session will touch on the battles and victories associated with cystinosis. Everyone […]
March 2021
Cystinosis Sessions: March Video Call

Featured March 6, 2021 @ 4:00 pm - 5:00 pm

All are invited to join as the Adult Leadership Advisory Board hosts a live video call on Saturday, March 6th. This "Cystinosis Session" will focus on the topic of relationships. […]