On October 21, 2023, the Advanced Therapies Program will host the 9th Annual WORLDFair. Open to both patients and...
Read moreBy Cystinosis Research Network
October 5, 2023
Healogix Market Research would like to hear from the cystinosis community. If you use *or have used* Cystadrops and...
Read moreBy Cystinosis Research Network
August 25, 2023
Researchers, clinicians, industry and advocacy representatives attending CRN Nashville have been invited to exhibit research findings, treatment breakthroughs, and...
Read moreBy Cystinosis Research Network
July 5, 2023
The Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
Read moreNovartis has announced the Phase I/II CYStem clinical trial will recruit children ages 2-5 with nephropathic cystinosis. The trial...
Read moreThe CRN-funded QUALIFY-US study, also known as the Quality of Life study, is wrapping up this month. Our researchers...
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