Cystinosis expert, Dr. William Gahl Among Distinguished Inductees Extracted from National Academy of Medicine. Access full article here. The...
Read moreBy Cystinosis Research Network
October 15, 2018
RI-MUHC’s researchers increase efforts to eradicate rare genetic disorder in children thanks to Génome Québec and Genome Canada Pulblished...
Read moreBy Cystinosis Research Network
October 4, 2018
Spread cystinosis awareness on Rare Disease Day, Cystinosis Awareness Day and all year long! We’ve transformed the cystinosis awareness...
Read moreBy Cystinosis Research Network
July 5, 2018
The next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
Read moreNovartis has announced the Phase I/II CYStem clinical trial will recruit children ages 2-5 with nephropathic cystinosis. The trial...
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