Celebrate Halloween from home this year. ALAB invites you to a free, online event that will test your spooky...
Read moreBy Cystinosis Research Network
October 9, 2023
On October 21, 2023, the Advanced Therapies Program will host the 9th Annual WORLDFair. Open to both patients and...
Read moreBy Cystinosis Research Network
October 5, 2023
Healogix Market Research would like to hear from the cystinosis community. If you use *or have used* Cystadrops and...
Read moreBy Cystinosis Research Network
August 25, 2023
A newly approved eye drop solution will expand treatment options for people living with cystinosis in Canada. Targeting corneal...
Read moreThe Cystinosis Research Network (CRN) is pleased to welcome two newly appointed leaders whose professional expertise, lived experience, and...
Read moreNews from Leadiant regarding new storage of Cystaran (cysteamine ophthalmic solution) 0.44%. Beginning December 22, 2025, shipments of Cystaran...
Read moreThe next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read more