Cystinosis expert, Dr. William Gahl Among Distinguished Inductees Extracted from National Academy of Medicine. Access full article here. The...
Read moreBy Cystinosis Research Network
October 15, 2018
RI-MUHC’s researchers increase efforts to eradicate rare genetic disorder in children thanks to Génome Québec and Genome Canada Pulblished...
Read moreBy Cystinosis Research Network
October 4, 2018
Spread cystinosis awareness on Rare Disease Day, Cystinosis Awareness Day and all year long! We’ve transformed the cystinosis awareness...
Read moreBy Cystinosis Research Network
July 5, 2018
A newly approved eye drop solution will expand treatment options for people living with cystinosis in Canada. Targeting corneal...
Read moreThe Cystinosis Research Network (CRN) is pleased to welcome two newly appointed leaders whose professional expertise, lived experience, and...
Read moreNews from Leadiant regarding new storage of Cystaran (cysteamine ophthalmic solution) 0.44%. Beginning December 22, 2025, shipments of Cystaran...
Read moreThe next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
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