Children’s Friend Inc. is studying the experiences in and barriers to accessing mental health services for families. For the...
read moreMembers of the CRN’s Medical Advisory Board and Scientific Advisory Board weighed in on their thoughts regarding the COVID-19...
read moreNow more than ever, our world relies on technology to stay connected. The Cystinosis Research Network (CRN) has partnered...
read moreNovember 17, 2020 – AVROBIO announced that data suggests functional and clinical improvements for the first cystinosis patient at...
read moreAs of today, November 12th, AllianceRx Walgreens Prime is unable to fulfill any orders of CYSTARAN. Leadiant’s full announcement...
read moreRecordati Rare Diseases Inc., the makers of CYSTADROPS, launched a website to support the launch of the eye treatment...
read moreIn a statement from Leadient Biosciences on October 9th, the company announced an availability shortage may impact cystinosis patients...
read moreIn April, the Cystinosis Network Europe adapted their international conference to the restrictions set forth by COVID-19. The result...
read moreBeginning September 15, 2020, Recordati Rare Diseases announced the availability of CYSTADROPS across the United States. CYSTADROPS are a...
read moreTo address the shortage of Cystaran eye drops some members of our community may have encountered recently, Leadient Biosciences...
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