cystinosisrn

FDA Approves CYSTADROPS®

Recordati announced approval of an eye drop treatment to reduce corneal crystals. “We are pleased to bring Cystadrops® to...

We are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...

Partnering with RDMD, this program aims to accelerate cystinosis research to ultimately improve treatment options. We welcome you to...

We are pleased to announce a collaboration between the Cystinosis Research Network (CRN) and Cystinosis Ireland to fund a...

AVROBIO announces the second patient with cystinosis has been dosed in the company’s AVR-RD-04 investigational gene therapy Phase 1/2...

On Thursday, July 2nd, the CRN announced a face mask fundraiser to help create awareness, bring in donations and...

In the third episode of “Cystinosis Sessions,” a live video conference series created by adults living with cystinosis, topics...

The Rare Diseases Clinical Research Network (RDCRN) is hoping to learn how the COVID-19 pandemic impacts people who live...

With critical support from CRN, Drs. Foxe, Molholm, and Francisco from the Cognitive Neurophysiology Laboratory (CNL) in New York...

Advocating for rare disease sometimes feels like fighting an uphill battle. Living with cystinosis means you are 1 in...