This past winter we lost a revolutionary in the cystinosis world, Dr. Jerry Schneider. During his time at the...
Read moreBy Cystinosis Research Network
July 5, 2022
Press release originally published May 17, 2022 on Avrobio.com. New early data show key visual motor integration, visual perception...
Read moreBy Cystinosis Research Network
May 17, 2022
A global initiative has been announced: the Cystinosis Warrior Impact Program. Our goal is to support, help or find...
Read moreBy Cystinosis Research Network
April 29, 2022
A newly approved eye drop solution will expand treatment options for people living with cystinosis in Canada. Targeting corneal...
Read moreThe Cystinosis Research Network (CRN) is pleased to welcome two newly appointed leaders whose professional expertise, lived experience, and...
Read moreNews from Leadiant regarding new storage of Cystaran (cysteamine ophthalmic solution) 0.44%. Beginning December 22, 2025, shipments of Cystaran...
Read moreThe next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
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