In honor of Cystinosis Awareness Day – May 7 – Leadiant Biosciences is commemorating this event with a letter...
Read moreBy Cystinosis Research Network
May 7, 2021
Angel Aid is currently providing free trauma-less needle poke wellness kits for the cystinosis community. Their “Buzzy” kits were...
Read moreBy Cystinosis Research Network
March 9, 2021
On March 8, 2021, the Cystinosis Research Network announced Tim Wyman as the new interim President. The position was...
Read moreBy Cystinosis Research Network
March 8, 2021
Recordati Rare Diseases announced the launch of a new educational website: www.cystinosisinfocus.com. The site aims to help families manage...
Read moreAmgen has partnered with Believe Limited and the Cystinosis Research Network to bring back the third annual, Speak Up,...
Read moreAs of October 6, 2023, Amgen officially acquired Horizon Therapeutics. For our cystinosis community using PROCYSBI as a therapeutic...
Read moreThe long awaited Cystinosis Advocate Newsletter is here. Choose from research updates, advocacy efforts, family stories, events, cystinosis support...
Read moreIn May 2023, Novartis acquired the investigational autologous hematopoietic stem cell (HSC) gene therapy program for the treatment of...
Read moreCelebrate Halloween from home this year. ALAB invites you to a free, online event that will test your spooky...
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