To address the shortage of Cystaran eye drops some members of our community may have encountered recently, Leadient Biosciences...
Read moreBy Cystinosis Research Network
September 2, 2020
Recordati announced approval of an eye drop treatment to reduce corneal crystals. “We are pleased to bring Cystadrops® to...
Read moreBy Cystinosis Research Network
August 25, 2020
We are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...
Read moreBy Cystinosis Research Network
August 7, 2020
The Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
Read moreNovartis has announced the Phase I/II CYStem clinical trial will recruit children ages 2-5 with nephropathic cystinosis. The trial...
Read moreThe CRN-funded QUALIFY-US study, also known as the Quality of Life study, is wrapping up this month. Our researchers...
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