Thanks in part to volunteers at both the 2017 and 2019 CRN Family Conferences, this study was able to...
Read moreBy Cystinosis Research Network
January 26, 2021
An announcement from Horizon Therapeutics: With the growing dry ice shortage there has been an increased demand for NanoCool...
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January 9, 2021
Children’s Friend Inc. is studying the experiences in and barriers to accessing mental health services for families. For the...
Read moreBy Cystinosis Research Network
December 21, 2020
News from Leadiant regarding new storage of Cystaran (cysteamine ophthalmic solution) 0.44%. Beginning December 22, 2025, shipments of Cystaran...
Read moreThe next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
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