Members of the CRN’s Medical Advisory Board and Scientific Advisory Board weighed in on their thoughts regarding the COVID-19...
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December 16, 2020
Now more than ever, our world relies on technology to stay connected. The Cystinosis Research Network (CRN) has partnered...
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December 8, 2020
November 17, 2020 – AVROBIO announced that data suggests functional and clinical improvements for the first cystinosis patient at...
Read moreBy Cystinosis Research Network
November 19, 2020
News from Leadiant regarding new storage of Cystaran (cysteamine ophthalmic solution) 0.44%. Beginning December 22, 2025, shipments of Cystaran...
Read moreThe next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
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