The CRN 2021 Family Conference will be hosted in Nashville, Tennessee (U.S). Please visit our events page for details...
Read moreBy Cystinosis Research Network
April 28, 2020
On April 25th, a free online conference is being provided by Cystinosis Network Europe (CNE) and Cystinosis Ireland. The...
Read moreBy Cystinosis Research Network
April 8, 2020
How is the COVID-19 pandemic impacting our cystinosis community? A survey was created to help answer this question. The...
Read moreBy Cystinosis Research Network
March 24, 2020
The Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
Read moreNovartis has announced the Phase I/II CYStem clinical trial will recruit children ages 2-5 with nephropathic cystinosis. The trial...
Read moreThe CRN-funded QUALIFY-US study, also known as the Quality of Life study, is wrapping up this month. Our researchers...
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