How will you honor the “rarest” day of the year? Check out our cystinosis awareness giveaway. Sign up and...
Read moreBy Cystinosis Research Network
February 5, 2020
When it comes to Elle and cystinosis, “We continue to take each day dose by dose.” Hear more from...
Read moreBy Cystinosis Research Network
January 16, 2020
I do not have one story or just one person I can point out as a #GreatGiver. I am...
Read moreBy Cystinosis Research Network
December 3, 2019
A newly approved eye drop solution will expand treatment options for people living with cystinosis in Canada. Targeting corneal...
Read moreThe Cystinosis Research Network (CRN) is pleased to welcome two newly appointed leaders whose professional expertise, lived experience, and...
Read moreNews from Leadiant regarding new storage of Cystaran (cysteamine ophthalmic solution) 0.44%. Beginning December 22, 2025, shipments of Cystaran...
Read moreThe next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
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